We saw Dr Y today and I had yet another Zoladex injection. Yesterday was my last radium infusion. PSA was up to 179 from 107 4 weeks ago, so that is a concern. Basically it means the radium is not working any more. The recent CT scan shows no soft tissue metastases and that is a great relief. There are however, signs of skeletal advancement but that was expected. So far no signs of fractures and I am being very careful not to slip or fall as a hip fracture would be disastrous.
All the doctors agree that chemotherapy would be the next option. They are looking at commencing treatment (Docetaxel) in about 5 to 6 weeks. I still feel life is worth living so I have decided to give it a go and see what happens. I can always quit if I want to. I plan to write to Dr W in Australia and ask his advice as returning to Australia is still an option. Meanwhile I have increased my prednisone and I have noticed some improvement in how I feel. Better to be fat than miserable.
Next week I will be back on Zytiga for 4 weeks and it will be interesting to see if any effect on PSA. It is just a waiting game, meanwhile we enjoy the good days and endure the bad ones. I still enjoy and benefit from my needlework, and of course there is always Netflix!
It has been quite a trying week for both of us.
First was the news that my psa has risen from 35 to 63.4, not what we were hoping for...
We saw Dr T on Tuesday at BCCA. I was very tired following the MRI on Monday. I had to lie on the examination bed so I wouldn’t faint. Dr T said that the MRI looked ok but he doesn’t have the complete report yet. We discussed the rising psa and he said it looks like perhaps the radium is not working, however he would like me to continue with the radium treatment. We discussed my fatigue, apparently radium does not usually cause such fatigue. Next it was up to the lab for more blood tests and an ecg (electro cardio gram). It was good to get home. The radium infusion was to have been on Wednesay but Dr T has rescheduled it for Friday. Dr T called next morning and said my electrolytes were out of whack and I am dehydrated, which would contribute to me feeling dizzy and faint. I had the option to go in for an infusion or re-hydrate according to his recommendations. I was already taking electrolytes every second day. He suggested l take Hydrolyte daily and double my water intake. After drinking more water and increasing the electrolytes I did feel better on Wednesday and we managed to go out for lunch. I even had a short walk around the shops so it was a good day.
Today we saw Dr Y who was his usual cheery self. I said I was concerned about the rising psa. He said that “sometimes when cancer cells are dying they give off a lot of psa, text book.” Then he said, “don’t give up yet, I will tell you when to give up….never!”
Tomorrow is the third radium infusion….We wait and see how it goes. Must say I have been better since increasing fluids and electrolytes though. Meanwhile the remaining snow is slowly melting away.
Here I go again with the black salve, this time in capsules form. I thought it would be black but it’s not, as you can see. I have read so many testimonials about black salve and other natural therapies, it is hard to accept that they are all fake. So, undaunted, I will continue in my quest for a cure, or at least a slowing down of the process.
First, to those who think I am wasting my time and money. These capsules do not cost anywhere near as much as the drugs from pharmaceutical companies. Also they do not do as much damage as chemotherapy, hormone therapy, surgery or radiation, all of which have failed in some cases despite the cost. In fact, people often end up worse off.
My new regime starts today. I take circumin with black pepper twice per day and blood root capsules 3 times per day with food, as per the manufacturers directions. I will continue to monitor my psa on a regular basis. My last psa in March was nearly 50 indicating a doubling time of 5 weeks. Now that is scary!
Any reasonable person would conclude that my experiment with black salve didn’t work, in fact it may have made things worse! Unreasonably, I prefer to believe that it has stirred up the cancer cells, causing them to excrete psa in their agony of dying. I visualise those little buggers writhing in pain, doubled over as psa oozes out of their contorted bodies! The dead bodies mopped up by my strengthened immune system and leaving my body through the usual channels.
Well that is what I choose to believe. My next psa test is later next week. Until then I hold on to my faith. Cancer does not have me. My spirit is well!
Thank you to all who consciously or unconsciously are praying for me, and a big thanks to my partner S who is my faith when mine is weak.
The brief Holiday is over and it is back to normal life, if you can call it that. S and I had a great game of Mini Golf, she beat me 56 to 60, par 46, well deserved! That night I received an email from my Oncologist in Newcastle NSW. He suggests that I see him in 3-4 months from now. I was so relieved to receive this news as I do not wish to leave my beloved S any sooner than I have to. My flight is booked for early July….
Unfortunately I will not make the required 12 months living in Canada before I can apply for permanent residency, so I am not sure what will happen there. I don’t know how long I will have to stay in Australia, but I plan to return as soon as I can. S told me that if I have to stay longer she will come out and stay with me.
As for treatment, who knows? I guess it will be the usual run of tests and jabs, try this, try that and see what happens. I wonder sometimes, are we treating the psa or are we treating the disease? I feel fine, I have no symptoms of cancer. If you saw me you would say he is pretty fit for a 70 year old!
Tonight I give my maiden speech at Toastmasters. I really enjoy doing this, it helps take my mind off other things. I am a little apprehensive, but well prepared. Will let you know how it goes…..