Yesterday I walked 220 steps. That doesn’t sound like much, does it? Even less when I tell you I used my walker. That is the longest walk I have taken this year! I was tired afterwards but it felt great to do that.
My new medication, Zytiga with Prednisone is working well so far. After 15 days psa dropped to 1800. After 3 weeks I have no adverse side effects, just occasional hot flushes. I am also using Fentanyl patches for pain control. It is very effective with none of the side effects of morphine.
Following the cementoplasty to my left hip, my leg feels much more stable. I can walk short distances unaided but with a limp. There is no limp using the walker.
My sister Rae and brother in law Ray have come all the way from Australia and we are enjoying their company. They have rented an apartment in Richmond. We are looking forward to a 7 day Alaska cruise with them in May. Having a disability got us a really good deal, so it’s not all bad!
Finally, a word on ostomy pouches. It is a smelly, messy process that still requires both of us to perform. Some days it fills up 3 times. Some days not at all. Twice we have needed to get home quickly to avoid a disaster! I expect I will soon be ok to empty the pouch on my own. I have to go down on my knees before the throne and this involves quite a bit of preparation. Changing base plates is a different story. Stefanie has that job as I can’t see to make an accurate fit around the bit of bowel that sticks out of my belly. Besides I have to be on the lookout for unexpected eruptions which fortunately are rare.
The journey over the last few months has not been fun. We all hold onto life by a thread, so enjoy what you have while you still have it! Thanks everyone for your support, prayers and good wishes. They make a difference!